Great Clip from ABC in Toledo, OH

(Video: EDS’ effects on blood vessels/aorta, from ABC Toledo)

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  1. Angela

    Glad that there is some awareness starting. You don't know how much I would like to start fresh in a new town, and have everyone just know that I am disabled, instead of people that have seen me out and about for years and think I must be fine. My daughter has a dilated aoric root, so the vascular part of EDS scares the crap outta me. I'm really glad that there are docs with good knowledge in this, though.


  2. Vegan Danielle Davis

    @Angie – I am so glad there is too! And, boy, do I understand. Wouldn't that be nice to just start fresh, where everyone doesn't question your every move and whether or not you are disabled, including family and friends….how nice that would be! I am SO sorry to hear about your daughter's aorta. How is it doing these days? How often does she go back to have it checked?


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