Genetic Illness Awareness Award for My Life with EDS!

What’s a fantastic way to come back from a long posting break? How about an award?!

My Life with Ehlers-Danlos Syndrome was just awarded as a “leader in the Ehlers-Danlos Community” by the wonderful organization AccessDNA. I am absolutely honored to be the recipient of this distinguished award, which recognizes individuals and websites that “help increase awareness of both rare and common genetic disorders by creating accessible and reliable information on genetic conditions.”

I would like to thank AccessDNA for providing information on Ehlers-Danlos Syndrome on their website, for their interest in obtaining first-hand information from those of us who actually live with this genetic disorder, and for recognizing community leaders who are helping to increase much needed awareness for EDS, as well as for many other genetic illnesses.

Thank you, AccessDNA!



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