Update on Life and My Six Amazing Arm & Hand Surgeries

Hi EDSers, PoTSies, and those suffering from LPHS,

It’s been about a year since my last post and I have been well. I am sorry it’s been so long since I have written; it’s been a whirlwind of a year, with a very major surgery for my Loin-Pain Hematuria Syndrome and a move to San Juan Island, Washington. I will write more about my surgery later. Today I just want to take a quick moment to thank each and every one of you who has written me during my absence to check on me, and let you all know that I am alright. My health is in a good place, considering everything I deal with; and, I also want to update you all on my beautifully done hand and arm surgeries.

I am thrilled with the work of Dr. William B. Ericson and my six arm and hand surgeries. To read more about them please visit my post:

Here are the updated photos of my minimal scarring. Looks great, eh?!

Dr. Ericson’s contact info:
The Ericson Hand and Nerve Center
6100 219th Street SW, Ste 540
Mountlake Terrace, WA 98043
Phone: (425) 776-4444
Fax: (425) 272-2730


From EDNF:

Dr. Ericson is an award winning orthopedic hand surgeon with a special interest in painful conditions that do not show on standard diagnostic tests, including joint instability and peripheral nerve problems. He obtained his bachelor’s degree in Biochemistry from MIT with a thesis on collagen and elastin, and then graduated from Harvard Medical School. He is board certified in orthopedic surgery and hand surgery, and is in private practice in the Seattle area, with a large number of Ehlers Danlos Syndrome patients in his practice. He has developed a unique and highly successful approach to treating upper extremity pain and weakness in this patient population.

Dr. Ericson belongs over 20 specialty societies and is a Fellow of the American College of Surgeons, a Fellow of the American Academy of Orthopedic Surgeons, and a Fellow of the Association of Extremity Nerve Surgeons, who awarded him the Jules Tinel MD Award in 2009 for his work in this area. He was the Chief of Hand Surgery at Winchester Hospital, Winchester, MA from 1994 until 2005, and he is a past-President of the Massachusetts Orthopedic Association.




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